The Cutest Patient Ever...

No, this isn't an early Halloween mummy costume. For the past month 1/2 we've noticed Kennedy twitching her neck or what appeared to be spasms. I brushed it off for a while thinking maybe it was just small muscle spasms but as it continued I started to get more worried thinking it could be something else, something worse. I noticed it occurring more and more, probably because I was watching it and waiting for it to happen. I could always count on her having a few spasms in her high chair at meal-time right before bed, so we decided to video-tape it to show the pediatrician. We went in to see the doctor on Friday where he assessed her and watched the video we recorded. He seemed very concerned, then told me it looked like small seizures and we would need to take her in to see the pediatric neurologist at Primary Children's. We were able to (thankfully) get an appointment Monday, which still made the weekend long but we were glad we could get in so early and see what was wrong, if anything. We said lots of prayers hoping it would be nothing, but at the same time I wanted to prepare myself for the worst just in case. I googled all different kinds of neurological disorders like Infantile Spasms, epilepsy, tuberous sclerosis, and honestly the internet does nothing but scare you. Rick's an optimist, and I'm usually pessimistic when it comes to this kind of stuff, so he kept saying "She's too perfect to have anything wrong, it'll be fine." When we got to Primary Children's, we checked in and sat in the lobby waiting. I saw all kinds of kids with different neuro disorders, visible ones. It broke our hearts. We went back into an exam room and a resident physician came to assess Kennedy, asked me a bunch of questions all of which I answered "No", then the neurologist came in and did the same. He said developmentally Kennedy is completely on track, she doesn't seem to be lacking in her abilities, and then I showed him the video. He didn't seem concerned at all but set her up to get an EEG to put our minds at ease. They put 23 little leads on Kennedy's head and wrapped it tight so she couldn't yank them off (hence the mummy hat.) They left us in a dim room for a half-hour to monitor her brain waves, while they watcher her on camera too. She did one of her little spasms during the EEG which I was glad so they could see if it did anything. One of the techs came in after and did a strobe light test, which made ME really dizzy but didn't seem to bother K. :o) He said in kids who have seizures, usually the strobe will trigger them. Well it didn't to her. The neuro came back in with results, and nothing!! He said everything looked completely 100% normal and even during her "spasm," it didn't effect anything. He links her twitches to being completely behavioral, like a little funny habit she has. He said normal seizures or far more dramatic than her neck twitch and where everything came back normal he told us not to worry ANYMORE. We are so relieved and grateful for our healthy little girl. My heart truly goes out to all those parents dealing with hard things right now...I've heard of a lot lately. Bless you all.